A collective storytelling project gathering the experiences of nurses on the frontline of care during the Covid19 pandemic.
WELCOME
If you are a nurse who has provided care during the Covid19 pandemic, this post is for you. Thank you for considering sharing your story with me. If you think your story is not worthy enough, that someone else has a better perspective to offer, I can assure you that your story matters. Every story is part of the puzzle. I hope to attract a demographically and geographically diverse group of participants who have served in a variety of frontline capacities, from ER to ICU to floor nurses to hospice, to any other front-line patient care roles. I welcome all perspectives.
My purpose is to bear witness to nurses’ experiences through a project that is part documentary, part art. In one-on-one conversations, I will receive whatever you wish to share with me about what you have seen, heard, and felt as you have served patients and their families during the pandemic. Once interviews are complete, I will weave your individual stories, in your own voices and words, into one, collective narrative. The result will be a short film that I hope will open the hearts and minds of viewers to your experiences.
Reading news accounts throughout the pandemic about the harsh realities faced by those of you on the frontline of patient care and hearing stories from friends who are hospital chaplains about your bedside vigils with patients, I have been moved by the challenges endured by nurses on all our behalf and struck by how sheltered I have felt as I have been safely sequestered at home. By pairing your voices and words with images, sounds, and music, I would like to create a record of your experiences that honors the physical, emotional, and spiritual toll of your work and helps those who have not had your first-hand experiences to feel the weight and depth of them more fully than the written word alone can accomplish. I hope the film will underscore the vital role you, as nurses, play in general in the healthcare system, as well as the added weight that has fallen on your shoulders during the pandemic.
To listen to a witness is to become one.
⏤Elie Wiesel
My promise to those of you who participate is that I will listen deeply and will treat your story and your time with the utmost respect. Author and physician Rachel Naomi Remen has written that listening with attention⏤and I would add intention, as well⏤offers an opportunity for wholeness and healing. I believe that opportunity extends both ways in a converstion, to the listener and the teller. Through the film I hope to give viewers a sense of becoming your listeners and witnesses themselves.
I will strive to reflect what you share with me accurately and will offer all participants an opportunity to review the film before publication to make sure my use of your words feels true to you. I know that entrusting your story to me is a leap of faith on your part and I do not take that lightly.
Listening is the oldest and perhaps the most powerful tool of healing…When we listen, we offer with our attention an opportunity for wholeness.
⏤Rachel Naomi Remen
I am undertaking this service project as part of my participation in a year-long program on Socially Engaged Buddhism through Upaya Zen Center in Santa Fe, New Mexico. I will be working on the film production aspect of it as part of a Master of Fine Arts degree I am pursuing at California Institute of Integral Studies.
PROJECT UPDATE
I have concluded the interview phase of my project and am currently in the process of distilling the narratives from these conversations for my film soundtrack. I am extraordinarily grateful to the nurses who shared their experiences with me and hope to have a draft of the film ready in December 2021, for those of you who participated to review. I anticipate releasing the final film in February 2022.
“Just as people have eyes to see light with and ears to hear sounds with, so they have hearts for the appreciation of time.”— Michael Ende
If you are skittish about the topic of death, then stop reading this post right now. Or better yet, don’t. I used to be one of those people, superstitious that talk of death would draw it nearer somehow. Yet, when one of my closest friends was diagnosed with terminal cancer, it became a topic I could not avoid. And guess what? I found out that talking about death could actually be a very life affirming act.
I’ve been reminded of this irony recently by a friend of a friend of mine, a man I never met but whose forthright manner of living with and ultimately dying from ALS has inspired and touched me since I first heard his story. When my friend Barbara McAfee asked me to create a video of her song about her friend Jamie Showkeir, I had no idea I’d be drawn so completely into his story that I’d feel I knew him personally. (more…)
“And now here is my secret, a very simple secret: It is only with the heart that one can see rightly; what is essential is invisible to the eye.” — Antoine de Saint-Exupéry, The Little Prince
The first time it happened it was a quarter, not a penny. I was on a trail I’ve walked regularly for over a decade, where I’d never found a dropped coin before, and there it was near the end of my walk. I scooped it into my hand without breaking my stride and tucked it in my pocket. Was it a sign? A message? Ever the skeptic, I decided it would only mean something if the year on it was significant in some way. (more…)
I have two pairs of pink crocs in my closet. One is mine; the other belongs to one of my closest friends. I have her pair because I brought them home with me when I returned from her memorial service. She died of metastatic breast cancer at 48.
This story was written in 2013 as a response to the Boston Marathon bombing.
A fellow walker saw our feet sticking out of our tent together and said, “I see a cute picture!” Grateful she took it for us.
I don’t know why I wanted her shoes. I just did. She’d bought us matching pairs in 2007 when we walked the Susan G. Komen Breast Cancer 3-Day together in Boston, her hometown. They were to be respite for our feet at the end of 20 miles walking each day. That year marked her fifth year cancer-free from when she was first diagnosed. We wanted to celebrate, but even more so we wanted to honor the occasion with an act of endurance, strength and perseverance. Walking 60 miles in three days and raising money for a cure for breast cancer seemed like just the right thing to do.
When I first got home with her shoes, I tried them on. They still had remnants of sand in them from Martha’s Vineyard, one of her happy places and where she’d been just a month before she died. I took the crocs off as soon as I’d put them on. I didn’t belong in her shoes. Yet, having them side by side with my own pink crocs has been a secret comfort in the months since she passed away.
The news of the bombings at the Boston Marathon on Monday rattled me. I guess it rattled us all, as senseless, tragic and heartbreaking acts always do. Out of longstanding habit, I had the urge all Monday afternoon to text my friend. We would have traded notes and shared our shock. I would have sought reassurance that she and her family were alright. I felt her absence even more keenly than usual, and was deeply saddened as I thought about how many families would be shaken by trauma and loss from the bombings.
I have spent a fair amount of time in Boston over the years, both before and after the 3-Day Walk, and have always been fond of the city. I’ve collected a lot of good memories there. But covering 60 miles on foot through its streets and communities put it right smack dab in the center of my heart in a way that was altogether more personal and permanent. From the police officers in every town who didn’t just provide logistical support but smiled with kind words, their own stories, funny jokes and moral support, to the throngs of cheering crowds along the route, there’s just something special about Boston. I’ve walked the 3-Day two more times since in my own hometown and I mean no offense whatsoever to the Twin Cities, but no one cheers like Bostonians. It makes me think that the hearty, New England, patriot soul of the city gives its inhabitants an especially deep reverence for acts of endurance, strength and perseverance.
In my sadness on Monday evening, I happened to see the pink crocs in my closet. Just seeing them made me feel comforted, so I decided to put them on. I grabbed what I thought were mine, yet when I tried to slip into them, I realized I’d gotten two left shoes. I pulled out the remaining two thinking I could quickly sort out which was which. I remembered my friend’s shoes as having been far less scuffed and worn than my own and, of course, there was the tell-tale sand that would be definitive proof. Yet, turning the shoes over and over, I couldn’t tell which pair was which. Both are the same size and though the particulars of the scuffs were different, the amount of wear was just the same. The Martha’s Vineyard sand must have long since migrated to my closet floor.
Interestingly, instead of feeling sad, I was actually even more comforted by the fact that our shoes were now indistinguishable. I put on a left and a right and hoped that by luck I had chosen one of each of our pairs.
At the close of each 3-Day, there is a tradition that all walkers who have not been through cancer to take off a shoe and kneel in salute as those walkers who have been through cancer march into the event’s closing ceremonies. It is a small and symbolic way to honor the endurance, strength and perseverance of those who have been through the disease. Each time I have been a part of this ceremony, I have been moved to tears. But the one I remember most and hold closest to my heart was that first time in Boston.
So, Boston, I hope you can see me. Just like in the faded clipping I saved from the font page of The Globe six years ago, I am kneeling on the ground and raising one pink croc high in air, waving it proudly for you in salute and solidarity. We’re all in this together.
PHOTO Credit | Justine Hunt, staff photographer for the Boston Globe, Published on the front page of the Globe on August 9, 2007.
Every song has a story. But sometimes you don’t know the full story until the song itself shows you. Even if you wrote the song yourself.
Long plagued by stage fright when it comes to singing, I was preparing to do so for the first time in front of an audience for an evening of my own songs and stories. Don’t get me wrong, I’m not afraid of speaking to an audience; I love that part. It’s the singing that makes me feel vulnerable.
As I practiced and prepared, I kept picturing myself as the American Idol contestant who warbles embarrassingly off-key as the judges fidget. Every vulnerability I’d ever felt seemed to be right on the surface of my skin. Yet, as I was fending off my inner demons, I found a song forming in my mind that became a lifeline out of the turmoil. Actually, it felt more like a secret mantra; a mere five lines that gave me enormous comfort and calm.
One of my closest friends, who knew me well enough to realize how challenging this first public singing performance would feel for me, asked if she could fly out from her home in Boston to mine in Minneapolis to attend. “If it makes you more nervous, I won’t come,” she said. “Please come,” I replied.
The morning of the performance, I sang this new song for her. Simple, a capella. It was much too new to add to my set list, but I truly believed it had come to me so that I’d feel the confidence and courage I needed in order to sing for people that evening. What I didn’t know yet was that it would be several more years before I would realize the song’s true purpose: it was meant to be a lullaby for my friend.
When she was diagnosed with breast cancer for a second time, we all assumed she would undergo treatment and put the disease behind her again. The day after she learned the diagnosis was terminal, she told me she’d had a sleepless night. She lay awake, she said, and envisioned every possible outcome— from the one where she would defy the odds and live to be 100 to the one where I would sing “Where the Angels Live” at her memorial service.
I came to see her when she returned home from the hospital for the last time and began hospice care. The time between her diagnosis and this visit was shorter than any of us would have liked. And that’s the biggest understatement I’ve ever made. But the time was also filled with heart-rending moments of grace, of touching poignancy, of riotous laughter, of honesty and, most of all, love.
She told me a few months before she died that she was “banking memories” for herself and for everyone she loved, consciously making time for moments together that would sustain her and the rest of us through her passing. She was filling the well, she said.
I did sing for her at her memorial service. And I brought my oldest child, her goddaughter, to sing with me. The song deserved harmonies. My ukulele was the simple accompaniment, though I was fairly certain that the people in the back of the church might not even hear it. The important part, I knew, was the voices.
I told the overflowing crowd of her family, friends and colleagues that we all had a job to do together. And then I shared the promise that I had made to her. The night before I left her for the last time, she had wanted to discuss her memorial service. I promised her again that I would sing, but told her that I also planned to ask everyone sing with me. In singing together, I’d said, we’d not only help ourselves begin to heal but our voices in unison would lift the song to the high heavens as a lullaby for her.
On a fall day that began with rain and ended with the sun peeking out from the clouds, in a quaint New England church, I kept my promise to my friend. And, in doing so, I realized the true purpose of my song. I felt it in my bones. I knew it in my heart. I heard it in all the voices that joined together to sing with my daughter and me. The well is deep; there is no limit to love.
∞ ∞ ∞
Where the Angels Live
Can you feel the space between heartbeat and breath?
Click this link for the audio version of the narrative, if you’d like to hear the story told, rather than read it.
Though I recorded a version of “Where the Angels Live” in studio with full piano and guitar accompaniment, I felt it was important to also create the simple, spare lullaby version that my daughter and I sang at my friend’s memorial service. Recorded at home, I paired the song with nature photographs by J. Marion Brown in a video to honor the memory of my dear friend.
The Elizabeth Alling Sewall Endowment Fund was established at the Dana Farber Cancer Institute to support research to help find a cure for breast cancer. If you’d like to learn more about this worthy cause, please visit this site, which also tells more about Elizabeth’s life.
